Privacy Policy

PURPOSE AND COMMITMENT TO PRIVACY

Defeat Multiple System Atrophy Australia Limited t/a Multiple System Atrophy Australia ABN 57 638 405 151 (“MSAA, we, our, us”) is committed to protecting the privacy and rights of individuals whose personal information it collects in connection with its charitable activities, including donations, newsletter subscriptions, and use of our website. MSAA is bound by the provisions of the Privacy Act 1988 (Cth) (“Privacy Act”) and the Australian Privacy Principles (“APPs”) and manages personal information in accordance with all applicable privacy laws.

This Privacy Policy sets out how MSAA collects, uses, discloses, stores, and safeguards personal information, and outlines your rights in relation to such information.

DEFINITIONS

    • Personal Information means information or an opinion about an identified individual or an individual who is reasonably identifiable:
      • whether or not the information or opinion is true; and
      • whether or not the information or opinion is recorded in a material form.
    • If information does not disclose your identity or enable you to be identified it will in most cases not be classified as personal information and is not subject to this policy.
    • Sensitive Information means information or opinion about an individual’s racial or ethnic origin, health information, membership of professional associations, religious beliefs, criminal record, or other information as defined in the Privacy Act.

COLLECTION OF PERSONAL INFORMATION

MSAA collects personal information that is reasonably necessary for its functions and activities, including but not limited to:

    • Your name, contact details including postal address, email address and phone number,
    • Payment information, such as credit card or bank details is collected and processed securely via trusted third-party payment processors, and retained only as required for transaction processing and compliance with legal obligations.
    • Any medical information
    • Any other personal information you authorise us to collect

General Website Usage

    • When you access or interact with the Website, MSAA may collect information including device type, browser type, IP address, and usage information via cookies or similar tracking technologies. This assists in delivering content, optimising the Website, and improving user experience.
    • Cookies used may include necessary cookies (essential for Website operation), functional cookies, analytics cookies, and third-party tracking cookies. You may disable cookies through your browser settings, but this may affect the availability of some Website features.
    • You will be provided with a cookie consent banner on first visit to the Website, which allows you to accept, customise, or reject cookies.

Other Interactions

MSAA may collect information through correspondence, telephone calls, events, surveys, or other mechanisms. Information collected may include images, audio-visual recordings, or health information (for example, event participation, accessibility requirements).

Children

Where MSAA collects information relating to individuals under the age of 18 years, parental or guardian consent will be required if the individual is not of sufficient maturity or understanding to provide valid consent independently. MSAA ensures appropriate safeguards and processing in accordance with the Privacy Act and best practice guidelines for protecting children’s privacy.

Sensitive Information

    • MSAA may collect sensitive information only where required for MSAA’s charitable purposes and with your express consent, or as authorised or required by law. Sensitive information will be handled with heightened care and subject to access restrictions and additional security measures.

You may wish to decline to give us any personal information we request, however this may prevent MSAA from being able to assist you with your request.

USE AND DISCLOSURE OF PERSONAL INFORMATION

    • MSAA uses personal information for the following purposes:

        • To receive and process donations;
        • To administer newsletter subscriptions and other communications;
        • To respond to enquiries and correspond with individuals;
        • To manage, plan, and facilitate events, fundraising activities, and projects;
        • To improve Website functionality, performance, and user experience;
        • To comply with applicable laws, regulations, and reporting requirements;
        • To conduct market research, impact assessment, internal analytics, and improve services;
        • To evaluate donor impact and enhance the effectiveness of MSAA programs;
        • For other purposes associated with the primary purpose of collection, or as otherwise authorised by you or the law.

      Disclosure of personal information may occur to trusted third parties who provide payment processing, information technology, marketing, data storage, event management, legal, or compliance services to MSAA. All disclosures are subject to appropriate contractual and security safeguards to protect confidentiality. MSAA does not sell, rent, or licence personal information to third parties for marketing or commercial purposes.

      MSAA may use your personal information to provide information about programs, fundraising initiatives, events, and other opportunities consistent with MSAA’s mission. You may opt out of receiving direct marketing communications at any time by using the unsubscribe link in emails or by contacting MSAA at the details below. Opting out of direct marketing does not restrict MSAA from contacting you about transactions or matters necessary for legal or operational purposes. MSAA will only use sensitive information for direct marketing with your explicit consent.

DATA STORAGE AND SECURITY

MSAA implements reasonable steps to protect personal information from misuse, interference, loss, unauthorised access, modification, or disclosure. Information is stored in secure electronic databases and/or paper files. Security measures include password protection, firewalls, encryption protocols, locked physical facilities, and restricted access procedures.

Personal information is retained only for as long as necessary for the purposes for which it was collected or as required by law. When personal information is no longer required, MSAA will take reasonable steps to destroy or de-identify such information in accordance with legal requirements.

OVERSEAS DISCLOSURES

    • Personal information may be disclosed to overseas recipients (such as data storage providers or outsourced IT suppliers supporting MSAA’s operations outside Australia). When such disclosures occur, MSAA will take reasonable steps to ensure overseas recipients comply with the APPs or equivalent standards, except in cases of legal exceptions.
    • If you request MSAA to transfer your information to an overseas recipient, that recipient may not be required to comply with Australian privacy laws. MSAA may disclaim responsibility for any mishandling by that recipient to the extent permitted by law.

ACCESS AND CORRECTION

You are entitled to request access to personal information held by MSAA and request correction of inaccurate or incomplete information. Access and correction requests should be made in writing to:

info@msaa.org.au 

MSAA will respond to your request within a reasonable timeframe. Where MSAA refuses access or correction, you will be provided with written reasons, and in the case of correction refusal, allowed to add a statement to your file.

ANONYMITY AND PSEUDONYMITY

Where lawful and practicable, MSAA allows individuals to interact anonymously or using a pseudonym, such as for general website enquiries. Certain services (including donations and newsletter subscriptions) require provision of personal information, and anonymity may not be feasible.

COMPLAINTS AND PRIVACY QUERIES

If you have any concerns or complaints regarding MSAA’s handling of personal information, please contact theus using the contact details below. MSAA will acknowledge your complaint within 7 business days and will aim to resolve all complaints promptly and fairly. Complex matters may require additional time for investigation, and you will be kept informed of progress.

Please contact infor@msaa.org.au for any concerns or complaints.

If you are dissatisfied with MSAA’s response or believe MSAA has breached the APPs or the Privacy Act, you may lodge a complaint with the Office of the Australian Information Commissioner (“OAIC”).

Contact: www.oaic.gov.au or telephone 1300 363 992.

CHANGES TO THIS PRIVACY POLICY

MSAA may amend or update this Privacy Policy from time to time, with or without notice. Changes will be published on the Website and take effect from the date of publication. Please review this policy periodically to remain informed of updates.

This Privacy Policy applies to all activities of MSAA and its subsidiaries or affiliates in Australia, unless otherwise specified.

Last updated 18-Mar-2026